Sick and Tired…

I am really sick and tired of being sick and tired. I became seriously ill back in 2007 and fought it off and worked every single day that I could. I was determined to cope with things.

Then in February of 2009, I became even worse. One morning I woke up, and I simply could not move. Every time I tried, a searing pain would shoot the whole way around my body and that made it impossible for me to actually get my ass out of bed. My body was sick and tired of being forced through that shit every single frikkin’ damn day.

I shouted and shouted and eventually my eldest got up out of his bed and came through to see what the hell was wrong. When he saw the state I was in, he just ran forward and gave me a huge hug. I had to really bite my lip to keep from screaming on that one, because my eldest is severely autistic and if I had reacted in any negative way, it would have severely affected his mood and I will never deliberately do that to him. Ever.

Eventually, around ten minutes later, he went and got me what I needed – my own mobile phone so that I could call the boys school and tell them that they would be a little bit late as I was having some difficulties. Luckily the school understood and were really fine about things. Then I had to call my partner who was at work and wasn’t happy about having to come home. That was until he actually got home and saw me sweating and vomiting over the side of the bed into my rubbish bin because the pain I was experiencing was literally that bad.

He rang my doctor’s surgery and they advised him to call 999 to get me to hospital. I fought against this because the ambulance service are under enough stress. They don’t need to be dropping the blues and twos for my pain they really don’t. So I begged for a doctor to come see me at home instead. Foolish me thinking that he would see me and just tell me to rest a while and all would be well. Oh no no foolish woman! Guess again! After being poked and prodded around, he pulled my partner off to one side and started talking to him which really did piss me off! Ummmm, hello? It’s my legs that aren’t working, not my brain.

The doctor then announced that I did have to go to hospital and he was calling ahead to get me a bed and also arranging for ambulance transport (not paramedics) to come and take me in. My partner packed my bags and then took the boys to school so they wouldn’t have to see me leave in an ambulance. He was back before they even arrived. A fast ambulance ride later and I arrived on the medical emergency ward. A few hours later, I was taken onto one of the medical wards. My care was undertaken by a group of consultants. Medical, Orthopaedic and Rheumatolgy. I went through two long weeks of scans, X-rays and blood tests. This resulted in me being given one hell of a shock. I didn’t get just one diagnosis. I got several, and all of them were life changing.

I was told that I had both osteo and Rheumatoid Arthritis. Then Fibromyalgia and type 3 Ehlers-Danlos Syndrome which also led to me being diagnosed as having Dysautomia due to Postural Orthostatic Tachycardia Syndrome. After that came osteoporosis.

Just as an afterthought, I have restless leg syndrome, trigeminal neuralgia, carpal tunnel syndrome, asthma, a cardiac murmur and a small congenital hole in my heart. Couple that with Polycystic Ovarian Syndrome and IBS and you can imagine that since February of 2009 that my life has become hugely different and I had gone from being a totally independent woman who worked bloody hard and had been a registered nurse for most of my working life to being a totally dependant woman who needs help with pretty much every aspect of my personal life and care. This really gets to me. It makes me so sad and so freakin’ angry. I used to bake some pretty awesome cakes (I did a mean lemon drizzle) and I just can’t do that anymore. I can’t cook, clean, take care of the house or myself. I literally am dependant on my carer for everything. Yup, at 46 years old, I have a carer. 😭😭😭 I hate my life.

My day starts when I wake up, normally around 4am. I’ll have had around three hours of broken sleep and been tossing and turning like a fucking washing machine. I then clock (almost typed cock then) watch round to 6.30am when I can take my morning medication – hey, it’s only a handful of 15 pills. Shake me and I’ll rattle! Then I need to wait until around 8.30-9am for my carer to arrive. I’ll then get my hot water bottle made for my back. If the day is a very bad one, then there is a less than zero percent chance of me getting out of bed. I know if I do my pain levels will shoot through the roof and if I’m lucky, only one joint will dislocate. I have learned how to pop most of my joints back into place. I would be spending half of my life in the emergency room otherwise. The only joint I can’t do is my shoulder. So days like that see me with all of my braces on and resting in bed.

β—¦ On the rare days when I feel well enough to get out of bed, I will have help to get changed into a clean pair of PJs. I have hyperathaesia and my skin is so sensitive, most days I can only tolerate soft cotton PJs. On bad days, I have to go nekkid. If my bad days fall on a day where I have to leave the house for an appointment, I really suffer and have to strip the moment I get back home. I hate it.

On good days, I’m able to prop myself up in bed and either do some colouring or write letters. On a bad day, I just tend to cry and read on my Kindle.

I’ve learned to accept that my day is peppered with taking pills and having my time consumed by struggling to do even the most simple of things. I’ve had to learn not to be sick and tired. I’m just so very lucky that my friends and family are tolerant and I am so bloody lucky to have them in my life I really am. Without them I would be less than nothing.

Most of my days are now spent reading, writing letters as I’ve already said, and trying to think of interesting things that people who follow my blog might like to read. I try hard to balance what I write and I also try to fact check anything newsworthy as I don’t like spreading stories that aren’t true. It can do a lot of damage to people.

So why write this? I guess just to show how things can change in the blink of an eye and you should never be ungrateful for what you have. I see myself now as very lucky. People have asked me how I can say that given how my life has changed. It took me a while and a lot of adaptation before I could say it. I have two fabulous kids, a partner who worships me, a gorgeous if slightly potty cat and some of the best friends that I could ever wish for!

Be kind to each other!x

Unboxing & Review of My Final Blurt Foundation Buddy Box April ’18…

Well, as I said in my last post about the Buddy Box, this is my last one that I was going to be getting. I’m sure that lots of people like these boxes but they are just not for me. No way. I’ve really tried to get on with them, but they are just not for me. I think I know why. I have five passions in my life: my kids, cats, stationery, Kawaii stuff and yummy snacks – in that order. I genuinely think that is why I get so much more fun out of the stationery, cat and snack themed boxes.

So, here we go. The top of the box was a picture of a bear on a bike juggling lemons I think.

Upon delving into the box, I uncovered the usual two postcards. One of which you can send to people and one of which has the box contents on the back.

The first thing of substance was a big bag of “comfort me” tea bags from the English Tea Shop. They contain chamomile, spearmint,amalki, basil, ginger, vanilla and marjoram (all organic). I’m a bit reluctant to taste this as I’m not a lover of herb teas, I much prefer fruit teas.

Then came a tin of Badger’s organic sleep balm. I was actually super happy with this as I’ve used it before and it really helps. It contains both lavender and bergamot. You just pop some on to your temples at bed time and it really works.

Next comes a sample size sachet of a skin care scrub made from coffee grounds and lemongrass. Allegedly after a sweaty session in the gym this will really pick you up. As I’m in a wheelchair I don’t tend to go to the gym too much. Maybe I’ll be able to use it after trying to put my slippers on in the morning! πŸ˜‰

Then there’s a block of post it notes which all say on them “three things that are ok for today.” I think the premise here is that you write down here things that you would not normally do in a day. If it is on that post it note, it’s ok for that day. I’m thinking it’s more Netflix/pizza/chocolate type of deal than kill your boss though you know?

Then comes the book. It is an international best seller written by a French guy called Fabrice Midal. The book is called C’est La Vie: The French Art Of Letting Go.

Lastly there is the usual Blurt “zine” which has an adorable Pug picture on. I love pugs so much!

Well so long Buddy Box.

Be kind to each other.x

Things You Take For Granted…

There are many things in this life that we all take for granted and are not in the slightest bit grateful that we have the ability to actually do them and do them without even thinking about it.

Little things like brushing your own hair and brushing your own teeth are so underrated… until you cannot do them by yourself. I cannot brush my own hair. My carer is awesome, but has so much to cope with that little things like my hair get forgotten about. Then I end up feeling guilty that I have to ask. Then half an hour later I have to ask again as it has been forgotten and so on and so on. I end up in floods of tears as I feel like I’m nagging for something that is so simple that is so simple, I should be able to do this for myself. Yet I can’t. I try to lift my arms up to get my hands to my head and my shoulders crack and searing agony shoots across the top of my body. My shoulders will not move more than an inch before they crack and pop, and if I’m not careful, they will dislocate. That, my dear readers hurts like a bee-otch I can tell you. I can’t brush my own freakin’ hair and I hate myself for it. I feel so freakin’ useless because of it. I really miss just being able to lift up the brush, style and go.

Brushing my teeth. That, like most of the hygiene related tasks that I can relate to is so difficult. On the good days when I can stand at the sink, I have an electric toothbrush, but when I can’t make it? I have to use listerine strips.

All of these little things. Hygiene, dressing, getting to the loo and even pampering yourself. Little things that you take for granted when you are “healthy”. You simply do not realise just how much you miss them until you can not do them, and the effect that this can have upon you as a person can be quite devastating, it really can.

I miss ironing. Yes, I know that you will all recoil in horror, but I genuinely did love ironing. I would put on some classical music and happily stand there till it was all ironed. Socks, underwear, towels, the lot. Even something as mundane as housework. Even things you hate (for me that was hoovering) but ironically I even miss that.

I guess that my point here is that you do not realise just how valuable little mundane aspects of your life truly are. Things that you would do without even thinking about it. Spreading your own butter on a piece of toast. Opening a can of fizzy juice. Those are the kinds of things that you do not miss until they are no longer a part of your everyday life.

I’m slowly learning how to cope with this aspect of my illness, and every day that passes, I become a little more adept at coming to terms with what I no longer have the ability to do due to my illness. I’ll never be completely over it but in life, we must learn to adapt when our circumstances change and we cannot prevent it.

I guess that what I am trying to say is this. Never, ever be upset or ungrateful about little things. Be glad, be happy that you can pick up that iron or push that hoover. Be glad you can make your own cup of tea or coffee. Be glad you can stand in the shower and not have to sit on a chair and have someone wash you while you are there.

Give thanks every day for the small stuff. Never ever lose that, and always love your life.

Well, I guess that is all for this time so I’ll finish here.

Be kind to each other.x

Unboxing my February ’18 Blurt Foundation Buddy Box (subscription box)…

My box arrived yesterday and was wrapped in plastic, which was a little bit of a downer as I couldn’t neatly open it to repurpose it. There was a tear in the corner of the bag. Looking suspiciously like someone had tried to peak inside. However, as the boxes are plain brown apart from some gold lettering and pictures on the lid, it wasn’t possible to see what was in the box. Whoever peeked probably thought, “Dirty cow’s been buying sex toys!” 😜😜😜 However in all seriousness I would like to see some recyclable/biodegradable outer packaging. That would be nice.

Why do I have a Blurt Buddy Box? Quite simple really. It’s my friend Jenna’s fault. Yup. Blame squarely at her door, on her shoulders, however you want to say it. Hahaha, just kidding. Love you dude!

So who are Blurt?

Well, quite simply put, Blurt are like a big cuddle you can get on the internet when you feel like your black dog is snapping at your heels. Whether you are newly diagnosed with depression or have known for a long time, we all occasionally need help. Blurt are here to give that help.

What are Buddy Boxes?

Buddy Boxes are a subscription box service that exist to bring some self care and happiness through your letter box once a month. They also help The Blurt Foundation raise much needed funds to continue its hugely important work. They cost Β£21.50 a month and postage is free within the UK. They do ship internationally but I’m not sure about costs. They do a Buddy Box which has five items and a Buddy Box Lite which has three. Obviously the Lite box is much cheaper.

I stress at this point in my post that I was not provided to me for free. I received a box from a very kind friend who has bought me a subscription for my birthday.

What’s on the box?

As I mentioned before, the box is a sturdy looking plain brown postage box (fnarr fnarr) and the top of the box is embossed with two gold llamas and the words Buddy Box.

(See what I mean? Sorry my camera just wouldn’t take this picture any better.)

What’s in the box?

I gave said box a jolly good sniff before I took the lid off. There was a definite smell to it but I couldn’t quite make my mind up what that smell was.

February’s box theme was “You’re the llamas pyjamas”.

As the box lid came off, the smell became much more noticeable and distinct. Not an unpleasant smell but not the nicest smell ever. (My favourites being cinnamon, ginger, and patchouli). The box was covered inside with white paper with black llamas drawn on it and was quite cute. Both the gift box and the llama paper could be repurposed so huge brownie points awarded there for sure.

As I peeled back the llama paper, there were two postcards sitting on the top of the contents. The first one was an orange one detailing the contents of the box (which I deliberately avoided looking at so I didn’t spoil my surprise). The other one was blue, with llamas on, along with the words “You’re the llama’s pyjamas”. It’s blank on the back, so that one can be kept in a collection or sent to someone to cheer them up.

Then I located the source of the smell. The stronger it got, the more unpleasant it got. It turned out to be a “fortifying green bath lotion” from MOA. The scents were peppermint, fennel and fir needle. The only smell out of those three that I like is fir needle. I loathe the smell of fennel especially as it smells like aniseed. However I’m not sad about it. You can’t like everything in every box every time right?

Next comes a llama keying craft kit that you can make yourself. It’s super cute!!! However as I have physical conditions that restrict my hand movement, my partner in Buddy Box crime, Jenna, has very kindly volunteered to make the llama keyring for me. She can have my bath lotion as a thank you for that. Strange girl… she likes aniseed.

Next comes a small sachet from “Conscious Water” which is a water enhancer. It has a hint of lychee rose flavour. It’s a tiny sachet, only 5mls but it does flavour your water. The taste isn’t unpleasant, but I don’t think that I would buy it again.

Then my absolute favourite part of the box. A pack of three llama’s pyjamas stickers! They are a decent size too so can decorate drawers, walls, folders, whatever you choose. I am a sucker for stickers I am!

Then we come to the fabulous book. It is called Believe in Yourself and is full of affirmations and things to boost your self esteem. I love it. Sat and read it though with a cuppa. Going to keep it next to my bed so that I can read it when I’m panicking. It’s invaluable.

Just some random page examples.

Finally we have the little “Blurt zine” that has uplifting things in it. It’s only four pages at A6 size so don’t expect it to be huge.

This is the first subscription box that I have ever had and on the whole, I loved it! I loved the whole experience of opening it up and finding the treasures within! OK, I didn’t like the bath lotion. Big whoop. I’m exchanging that in order to get help to have my cute little llama made for me (thank you Jenna!). We can’t expect to like everything, every time as I said. I loved this and cannot wait for March’s Blurt Buddy Box to arrive so I can tell you all about it. Take care and love yourselves people!x

Something positive just happened…

No, really. It did. Stop laughing! I am famous for being totally unable to take criticism and morphing and dissolving into a huge, bubbling ball of snot if anyone does offer up any criticism to what I do or say be it constructive or otherwise.

I guess it’s all down to the fact that for the first 33 years of my life, I was belittled and criticised every single day. It’s a difficult thing to overcome.

But today, totally out of the blue, something happened. I’ll tell you now. I’m a serial bookworm and after discovering that I actually quite like writing reviews of the books I read and posting them on here and also on Goodreads. A couple of weeks ago, I posted up a review and thought no more about it. But this morning, I received an email telling me that somebody had commented on my review. That has never happened before and I was keen to see what had been said.

I got to the comment and it was some grubby little troll who quite clearly had not had enough coffee yet this morning. Now under normal circumstances, the human snot ball would put in an appearance. Not this morning. I cocked an eyebrow, shrugged my shoulders and responded with, “My review, my opinion. But thank you for reading.” That’s it. Then I just moved on.

I feel weirdly elated and empowered. Staying calm and not losing it with some total stranger on the Internet has proved to me that I’m better than that. I’m not saying that I’m all better and healed, but I’m saying there’s hope. Her dirty footprints will not sully my mind today.

  

My beef with New Year’s resolutions…

I’m hearing from most of the people I know and seeing it plastered all over social media. “My resolution this New Year is xyz“. Sure, having the desire to make a positive change in your life is a great thing, but answer me this one question… why on earth do people need to wait to new year’s to make a change to their lives for the better?

I have been thinking about some of the resolutions that my friends have made (that I know about) in recent years. With the exception of just a couple, every single resolution has disappeared like a puff of smoke into the sky. The question is, why?

I think that people become so fixated upon their resolution/s that they really start to feel under too much pressure to succeed at what they are doing. The two classic resolutions seem to be stopping smoking and losing weight. People start out all positive and determined, but by the end of day one, the smokers and chewing their fingertips to the bone and the dieters are sweating and hallucinating about jumbo sized bars of Cadbury’s Dairy Milk. 

  
Then the smokers go cold turkey and turn from lovely people into complete asshats.

  
They start to feel the need and it’s a case of “Just one bit of chocolate” or “Just one more cigarette” and then back on the wagon. However, they can’t stop at “just one” and before you know it they are right back to square one and feeling guilty.

In my humble opinion, people are setting themselves up for a fall with new year’s resolutions because of one main reason. They don’t really want to do it. They are simply doing it because they feel obliged to. You “have” to make a New Year’s resolution don’t you? No. No you don’t.

You should make a change in your life because you want to, not because society tells you you have to. Screw that. Make changes that make you happy and do it when it makes you happy and feels right, not because society tells you it’s the time to do it!

Happy Hogmanay!

3 days 3 quotes challenge…

OK I suck. My last day of the 3 days 3 quotes challenge is a couple of days late. With my son being unwell, blogging has taken a bit of a back seat. But here I am. 
So, my last day… Who will I challenge? The rules are simple: three positive quotes each day for three days and challenge three people each day to take the challenge.

So here are my final challengees:
https://shithappens2u.com
https://humanity777.wordpress.com
https://oppositindsblog.wordpress.com
Here are my quotes.