How to feel fresh when your pain is so bad you could scream…

If you are a Spoonie, otherwise known as a sufferer of an invisible, chronic illness then what I’m about to say will make an awful lot of sense to you. If you are a relative/carer of somebody with an invisible or chronic illness then this may well make an awful lot of sense to you too.

There are days (like today for me) where clothes become an intolerable pressure on your skin and the friction is just too much to bear. I just can’t stand the feeling. I have hyperaesthesia which basically means extreme sensitivity of the skin. On days when it is really bad, I can’t stand to wear clothes at all. Most days I’m able to tolerate light cotton but nothing heavy, fleecy or woolly. Yet days like today? Nekkid is all I can tolerate.

The inability to wear clothes some days is amplified when my pain is bad. On those days, even my bedding is too much and I can’t stand it. So on cold days I have to go without blankets or sheets. Luckily for me, I love the cold weather so being cold really does not bother me at all.

There is one big problem when you feel this ill. There are some days where you simply do not even have the strength to stand at the sink for longer than 2-3 minutes. This makes maintaining your own hygiene very difficult indeed. I need help anyway. I am unable to lift my arms to brush my hair and I’m unable to reach from side to side of my body to wash properly, hence why I need a carer. Yet there are some days when (like today) I can’t even tolerate the feel of a flannel on my skin. It’s just too much.

If you have similar problems to mine, then I have a few suggestions that might help to make your day a little bit nicer. After all, hygiene is a vital part of feeling good about yourself so the more that can be done to help you the better. If your pain and general symptoms really are making you feel that shitty, then hopefully these suggestions will help you.

The first thing that I used to do in the morning, when I was able to maintain my own hygiene, and was working, was to wash my face. This product still allows me to do that. They are called Wake Up Wipes. They are brilliant value at just £1 a pack and really do make your face feel refreshed and bright to face the day. They contain cucumber extract and feel great on your skin. They can be found here:

https://www.misfitcosmetics.com/products/wake-up-wipes-wake-up-your-face-and-skin

Next up comes your mouth. There is nothing worse than morning dog breath and when you cannot make it to the sink to stand and brush your own teeth, it really does not make you feel very nice about yourself at all. I’ve discovered these little disposable toothbrushes on days when standing at the bathroom sink is not an option. They are called Colgate Wisp Max Fresh single use toothbrushes. They are really handy. Of cosier, brush your teeth when you can, but these little buggers are awesome on days that you just can’t. You can also use listerine strips which are great breath fresheners…

https://www.amazon.co.uk/Listerine-Pocketpaks-Oral-Care-Strips

Then there is the issue of maintaining your personal hygiene which can be a huge issue. If you are unable to wash, you feel smelly and generally very low. Being able to give yourself a quick wash, even if it is with wipes, it really does lift your mood. There are several brands of bed bath wipes. Shop around as you can find them quite cheaply if you try.

There is also the issue of feminine hygiene. I use Femfresh wipes for that. They can be found anywhere and are probably cheaper online if you look.

Lush’s Silky Underwear dusting powder helps absorb sweat and smooth your skin while the essential oils and herbs work to knock out the effects of bacteria. The Silky Underwear powder has a light jasmine fragrance and contains grated cocoa butter to help it melt onto your skin, creating a silky sensation. I love it!

If you can’t wash at at, a little surgical spirit on a cotton wool pad will remove body odour before you put on deodorant.

Witch hazel is a great way to cleanse your skin and it helps to cool the skin when overheated.

I also buy all my skin care from Lush, but since I discovered and fell in love with the marvellous Antonella The uncensored reviewer :

https://youtu.be/W7m4_6BD8cQ (Just one of her many awesome videos. BE WARNED: NSFW and definitely NOT FIT FOR CHILDREN!)

I will most definitely be trialling some of the skin care that she recommends.

There are other things like dry shampoo – I use the Batiste tropical one, but because my hair goes all the way down to my ass, one can doesn’t last me long!

Well I hope that this blog piece helps you, even if it is just to give advice to a relative. That’s all for now.

Be kind to each other.x

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