Call it what you will – chronic, invisible, it doesn’t matter one bit. What matters is that we have to suffer with it all.
I’ve been a sufferer since 2009. My life has drastically changed. I went from being an active, working full time woman, to being medically retired. My head was spinning. I found it so bloody difficult to adjust to the change in my life.
As time has gone by, my condition has deteriorated. Will it deteriorate any further? I don’t know. I hope not, but we shall have to wait and see what happens. I now require a lot of physical care and am not able to do a lot of the things that I used to take for granted.
The amount of ignorance there is surrounding chronic illness, no matter what the illness is. Not only ignorance but also prejudice. Many times I have had some utterly horrendous verbal abuse levelled at me, which is very much not OK. I’ve had people tell me that I shouldn’t be allowed out with “normal people” who have to tolerate wheelchairs! Utter scum.
Having to suffer the physical aspects of a chronic illness is bad enough. But the mental abuse? It’s beyond cruel.